Über Findacure

Due to the low patient population of each rare disease, living with one can be one of the most painful, devastating, and isolating experiences imaginable. We at Findacure want to change that. We are building a rare disease community that has the skills and knowledge to address patient needs, to drive research, and to develop treatments.

VISION

Our vision is a world in which all rare diseases have treatments – made together with patients, for patients.

AIMS

We look to achieve our vision through focusing our work around two main aims:

To empower patient groups to build their patient communities, develop as a charity, and drive treatment development.
We believe that patient groups have a fundamental role to play in addressing patient needs and representing the patient voice in research. Any change for patient benefit must include patients in the process.

To promote collaboration between rare disease stakeholders to facilitate treatment development for all.
We truly believe collaboration between patients, clinicians, the pharmaceutical industry, medical professionals, and other interest groups, is necessary for the rare disease community to progress and confront its most pressing challenges. A unified rare disease community is certainly better than the sum of its parts.

We are always on the lookout for volunteers to help us with a range of activities, including marketing, design, communications, fundraising, project organisation, on-the-day support, photography and scientific advice. Whether you are experienced in these areas or a complete beginner, we are sure to have something to suite your skills, availability and personal development goals.